• SEND speak

Learning Disability Week, Free Resources & Peppa Pig

Dear All

In a month dominated by Trump and the Tory leadership campaign, one sometimes wonders where Spitting Image is when you need it… instead, I recommend following Larry the Cat on Twitter @Number10cat

Happily, there’s lots of positive stuff on SEND this week too!!

1. Learning Disability Week – 17th to 23rd June

2. Carers Coffee Morning - Richmond

3. The Online Experiences of People with a Learning Disability

4. Your Health – Kingston

5. Learning Disabilities Task Group - Kingston

6. What a good idea!

7. SEND Dads speak up for Men’s Health Week

8. Newlife charity & their free resources

9. New guide to help manage anxiety in autism

10. Blue badges for anxiety

11. ADHD in Girls: How to Recognize the Symptoms (video 4.52mins)

12. When You Are a Paediatrician and Your Baby Has Down Syndrome

13. 'Peppa Pig' Introduces Mandy Mouse

1 Learning Disability Week – 17th to 23rd June

“Sport and physical activity can reduce loneliness and isolation. Benefits for people with and without a learning disability include improved health and wellbeing, empowerment and greater social inclusion. This is why the theme of Learning Disability Week 2019 is sport and inclusion.”

For more information on what the local Mencap’s are up to, please contact them direct:

Richmond Mencap

T: 020 8744 1923 E:


And the calendar of events for June (including LD Week)

Kingston Mencap

T: 020 8546 2837 E:


And the sports activities for LD Week:

2 Carers Coffee Morning - Richmond

“It’s Learning Disability Week from Monday 17th June to Friday 23rd June and one of the events we are hosting is a Carers Coffee Morning in partnership with RHLT and Walsingham.

Please come along to the Hive in Twickenham (RHLT's lovely shop/meeting room) on Twickenham high street and enjoy cake, a cuppa, a chat with staff or other carers. You can talk to us about concerns or worries or just come to rest. We are happy to hear about things you wish we did, and things you think we could do better, but you don't have to come with ideas and opinions. You can just come along to have a cuppa.

You may have heard the Council’s carers strategy is being refreshed so we will have paper copies of it there so if you want to let them know your thoughts you can. If you prefer to fill it out online (or not at all) the link is here...”

We hope to see you on:

Monday 17th June from 10.30 to 12.30

at the People Hive, 8 Heath Road, Twickenham, TW1 2BZ.

Richmond Mencap

3 The Online Experiences of People with a Learning Disability

This short survey – 3 questions only - is for people with a learning disability to complete themselves or with help.

Deadline is Monday 24th June.

“The Government has said it wants to make the internet safer. It has published what it wants to do in a document called the ‘Online Harms White Paper’ and has asked for views.

At Mencap we want to make sure that the Government understands the experiences of people with a learning disability so that its strategy works for everyone.”

Online Harms White Paper

“The Online Harms White Paper sets out the government’s plans for a world-leading package of measures to keep UK users safe online.”

You can find the full paper below, with a link to the consultation which closes at midnight on 1st July 2019.

4 Your Health – Kingston All Age Learning Disability Partnership Board Community Event

“This event is aimed at people with a learning disability living in Kingston as well as their parents and carers.

Wednesday 17th July - 10:30am to 2:30pm

Kingston Hospital, Galsworthy Road, Kingston upon Thames, KT2 7QB

Come and learn about the All Age Learning Disability Partnership Board and how you can get involved. Also, learn about how you can help review health and social care in Kingston as well as Kingston Hospital quality priorities. Take part in chair-based Zumba, a short Makaton class and join us for lunch.”

5 Learning Disabilities Task Group - Kingston

6 What a good idea!

“The smallest Premier Inn yet is opening in Coventry - with just THREE rooms

It is a partnership with the further education college which specialises in skills for independent living and employment for young people with disabilities and additional needs.”

7 SEND Dads speak up for Men’s Health Week

11th June 2019

“This week it’s Men’s Mental Health Week and Carers Week and according to Carers UK, 42% of the UK’s carers are men.

Like women, these caring responsibilities can have a huge impact on their health but there is often a stigma surrounding men’s mental health which prevents them from seeking the help they need. So, all this week My Family, Our Needs is encouraging SEND Dads to speak up.”

8 Newlife charity & their free resources

This charity offers some resources and a helpline for free – you can also apply for one of their grants:

“There are now around one million disabled and terminally ill children in the UK. Thousands of them rely on Newlife to get the equipment they need, equipment that has often been refused by the statutory services or the delays in provision mean that the child will suffer unnecessarily. Newlife runs the only fast track equipment services in the UK helping those children in urgent need.”

Newlife's Care Services Helpline

“Newlife’s Care Services Helpline provides professional confidential care and support to families and professionals caring for disabled and terminally ill children. Experienced Nurses are readily available to give condition specific support and information, while the rest of our trusted Care Services team provide information and updates about our Equipment Services.”

T: 0800 902 0095 (free from UK mobiles & landlines)

Monday to Friday 9.30am - 5.00pm (Wed 9.30am to 7pm) -

And under About, then Resources & Documents, then under the Care Services tab…

Social Care Revealed - April 2019

“Families are often put off involving social services because of the stigma attached to child protection. However social services have a much wider role in making sure that the full needs of a disabled child and their family are met. We’ve therefore put together this helpful guide to provide information on the sort of services available and how to get them.”

House to Home Guide - December 2018

“We know how stressful it can be for any family that needs to adapt their home for a disabled or terminally ill child, which is why we’ve put together this helpful guide to support families that need the information and guidance.”

Staycation Guide - August 2017

“A guide to disability equipment on holiday.”

9 New guide to help manage anxiety in autism

Published 25th April

“City academics and West Sussex County Council’s Autism and Social Communication Team have produced a unique and concise guide to help professionals make informed decisions to support the mental health of autistic children.

Around 40% of autistic children, young people and adults are believed to have one or more anxiety disorders, compared to 10-15% of the general population.

Less known is the fact that anxiety is not simply a part of autism - it is an independent disorder that can be treated in its own right.”

10 Blue badges for anxiety

The Local Offer (and Contact), published 6th June

“Last year the government announced its intention to expand the blue badge rules in England. After a lengthy delay the government has now published regulations confirming that these new rules will start to apply from the 30 August 2019.

Contact has published a new podcast, where one of their parent advisers talks about changes to the blue badge rules in England.”

The Telegraph, published: 15th June 2019

“The Department for Transport (DfT) has today issued new guidance to councils, advising parking attendants that people with conditions such as dementia or anxiety disorders could be eligible for the scheme.

However, as the DfT announced its extension of the Blue Badge scheme to those who cannot undertake a journey without considerable psychological distress or at risk of serious harm, it also announced a crackdown on fraudulent applications.”

11 ADHD in Girls: How to Recognize the Symptoms (video 4.52mins)

The How to ADHD channel has more than video. This one is on girls. Oh, and before you watch, remember this is about ADHD so expect fast talking! (err… how often have I told off my ADHD eldest about the speed he’s talking??)

“In this video I highlight the different ways ADHD symptoms tend to express themselves in girls.”

12 When You Are a Paediatrician and Your Baby Has Down Syndrome

“There are nearly 6,000 genetic disorders in the world. Yet Down syndrome is one of the few to be screened out.”

13 'Peppa Pig' Introduces Mandy Mouse

“A new “Peppa Pig” friend has rolled into town and she has a disability. On April 3, the popular British cartoon introduced viewers to Mandy Mouse, a character who uses a wheelchair.”

If you have any questions at all, please ask and I'll do my best to find an answer.

With best wishes, Romany




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