• SEND speak

Summer holiday reading & so much more!

Dear All

This week sees a lot of articles from the world of SEND – plus some local updates to open with; store this issue and dip in from time to time…

Over the summer holidays SENDspeak will appear less often – unless something AMAZING happens!!

That said, I’m thinking a lot about inclusion; what does that word mean to you? Not just education, but day to day? rsvp…

1. RaceRunning

2. TAG’s Transition & Local Offer Fair

3. Richmond - SEND Futures Plan

4. Kingston - SEND Transformation Plan

5. Have you had help from SENDIASS? How was it for you?

6. 0-25 Multi-agency SEND Data Dashboard

7. Working parents face £800 bill for summer holiday childcare

8. Know your child’s rights to social care support

9. New Expert Parent Programme: Complex Health Needs and Transition to Adulthood

10. Fighting for my Child

11. “How radio aids helped my deaf son”

12. Goodbye Daisy

13. The learning disability improvement standards for NHS trusts

14. The Last Leg's Alex Brooker: I have a special connection with the NHS

15. DLD: the common language disorder we need to talk about

16. “All teachers are Sendcos now”

17. Disabled Identification (DID) Card

18. Launch of tri-Force Autism Alert Card scheme

19. A Dad’s Letter to his Nonverbal Son

20. Dogs and a Relaxation app

21. Accessible Musical instruments

1 RaceRunning

“Racerunning is an athletic discipline for disabled athletes or 'racerunners'. Athletes use a running bike, a three-wheeled frame with a saddle, body support and most notably, no pedals.”

There will be a RaceRunning Start Session for all those new to RaceRunning at:

Monday 22nd July – 9am to 11am

Kingsmeadow Athletics Track, Kingston-upon-Thames

Registration required. £6 for CP Sport members and £8 for non-members

Please contact Adi Fawcett:

T: 0115 925 7027



2 TAG’s Transition & Local Offer Fair

“This year’s Transition & Local Offer Fair is going to one of the biggest information fairs for young people with SEND and their families and professionals in England with over 50 stalls!

An afternoon for young people and their families to come together with professionals and service providers to help piece together futures.”

Venue: Grey Court School, Ham Street, Ham, TW10 7HN

It’s free to attend, and free to have a stand. More information here:

T: 07557 397 934



3 Richmond - SEND Futures Plan

Following the consultations with parents, carers, children and young people, the 2019/20 to 2021/22 SEND Futures Plan is going to the Education and Children's Services Committee on 25th July – the agenda has just been published:

If you follow the link above and click on ‘Agenda Reports Pack’, you can find the request for the committee beginning on page 9


1.1 Attached as Appendix 1 is Richmond’s SEND Futures Plan which sets out the strategic plan to drive improved outcomes for children with SEND in Richmond, led by the Council, Achieving for Children (AfC) and the Clinical Commissioning Group (CCG), and supported by all relevant partner agencies. Having been considered by this Committee on 3 June in draft, the Plan now reflects the findings of the consultation carried out during June and July. The Plan is owned and overseen by the SEND Partnership Board, which will report on progress to the Health & Wellbeing Board, through the proposed Children & Families Strategic Partnership and as one of the core priorities of the Richmond Health and Care Plan

There then follows some detail, plus the headlines from the consultation responses.

The plan itself begins on page 17 – or you can click on item 4 in the link below:

4 Kingston - SEND Transformation Plan

The plan for Kingston will go through a similar process and their formal committee will be in Autumn this year. The link to keep an eye on is here:

5 Have you had help from SENDIASS? How was it for you?

“The National Children’s Bureau (NCB) has been commissioned by the Department for Education to conduct a customer satisfaction survey collecting feedback from all those who have sought the help of SEND Information, Advice and Support (IAS) Services.

This includes children and young people, their parents, carers, friends and family and professionals.

SEND IAS Services provide information, advice and support to disabled children and young people (and those with Special Educational Needs), and their parents/carers. All local authorities are required to make sure these services are available on a free, impartial and confidential basis.”

The survey can be accessed here.

6 0-25 Multi-agency SEND Data Dashboard

“The Council for Disabled Children (CDC) has developed the 0-25 Multi-agency SEND Data Dashboard, a commissioning tool to support local areas to understand their data relating to children and young people with SEND.

What is the SEND Data Dashboard?

The dashboard is a commissioning tool that brings together data relevant to education, health and social care in one tool.

The Council for Disabled Children has developed the 0-25 Multi-agency SEND Data Dashboard, a commissioning tool to support local areas to understand their data relating to children and young people with SEND.”

7 Working parents face £800 bill for summer holiday childcare

“Working parents face bills of about £800 for childcare over the summer holiday, according to research that shows provision remains inadequate across the UK, particularly for disabled children whose families struggle to find appropriate care.”

8 Know your child’s rights to social care support

from Special Needs Jungle – 9th July

Tania Tirraoro, with Liz Walker, Care Services Emergency Care Co-ordinator and Safeguarding Lead for Newlife the Charity for Disabled Children

9 New Expert Parent Programme: Complex Health Needs and Transition to Adulthood

“The Council for Disabled Children (CDC) is developing a bespoke model of the CDC Expert Parent Programme.

Once complete, this model will support parent carers of young people with profound and multiple learning disabilities and palliative care needs. It will also enable them to prepare for their child’s transition and to get the best out of the health and care system.”

10 Fighting for my Child

BBC Panorama (two days left to watch)

“In the aftermath of the Alfie Evans and Charlie Gard cases, Panorama meets three extraordinary families who spend their lives caring for children with serious disabilities.”

11 “How radio aids helped my deaf son”

“Having a radio aid gave five-year-old Levindinos Anastasiou, who has hearing loss, "a new lease of life", says his mum. The aids have two parts - the child wears a receiver with their hearing aid and the person they want to hear wears a transmitter, filtering out background noise.

The National Deaf Children's Society says more councils should pay for them.”

12 Goodbye Daisy

“Stephanie Nimmo's daughter, Daisy, was born with a rare, life-limiting, genetic disease. She had lots of things going on medically but in-between hospital stays, Daisy loved nothing more than going to school and spending time with her friends.

….As Stephanie spoke to the teachers and therapists who had worked with Daisy and her friends at school several things struck her; statistically children in special schools are more likely to lose a classmate than a child in a mainstream school; death and grief are not curriculum subjects; very few resources exist to help children, especially non-verbal or learning-disabled children understand and communicate their feelings around death and dying.”

13 The learning disability improvement standards for NHS trusts

“We have developed new standards to help NHS trusts measure the quality of care they provide to people with learning disabilities, autism or both. The standards have been developed with a number of outcomes created by people and families — which clearly state what they expect from the NHS.”

14 The Last Leg's Alex Brooker: I have a special connection with the NHS

The NHS: A People's History started on BBC Four on Monday 2nd July

(but you can catch up on iPlayer)

“Alex Brooker has found fame through being funny but a new documentary about the NHS sees the presenter return to his journalistic roots. He talks to Georgia Humphreys about why he wanted to be involved, plus how The Last Leg has boosted his confidence.”

"I remember going into counselling in 2010, because I became really conscious of my disabilities," the Kent-born presenter says. "And then it's almost like I've done another six years of counselling on [The Last Leg's] sofa, in a completely weird, surreal way."

15 DLD: the common language disorder we need to talk about

“A focused approach is needed to uncover difficulties with language development in primary school, writes Naomi Reed (for TES)

Developmental Language Disorder (DLD) is one of the most common childhood disorders – thought to affect two children in every class of 30 starting primary school – and yet a lot of teachers haven’t heard of it.”

16 “All teachers are Sendcos now”

“Headteachers can't expect Sendcos to solve every issue – the day of one person dealing with SEND has gone, says Colin Harris” (for TES)

17 Disabled Identification (DID) Card

Applicants will need to be able to show they are registered as disabled, but otherwise this is straightforward.

“Providing a unique disability initiative improving the lives of disabled people. Producing a much-needed single recognised National Identification (DID) Card for all disabled people. This new style ID card is easy and simple and just one card!”

18 Launch of tri-Force Autism Alert Card scheme

“An alert card and passport scheme aimed at improving how police interact with autistic people has been introduced across London.

The scheme is a joint project between the Metropolitan Police Service, City of London Police and British Transport Police, and is endorsed by the National Police Autism Association. It was developed following extensive consultations with autistic individuals and their parents, the National Autistic Society, Autism Partnership Boards and other partner agencies.”

19 A Dad’s Letter to his Nonverbal Son

All to often, it takes time for parents to understand their child is different – seemingly more often with Dad’s and their autistic children. Here’s a short and simple blog.

20 Dogs and a Relaxation app

Two items from JoeF; a young man who regularly contributes to SENDspeak

Dogs for Good

“There is a national charity called ‘Dogs for Good’ which supports children, young people and adults with disabilities (including Autism) through various projects involving the positive power of dogs. The link below will take you to the ‘Dogs for Good’ website which explains about how and why the Community Dogs Programme is so helpful. There is a video on this page featuring real life people whose lives have been transformed by the positive and nurturing power of dogs.”

Relaxation and nature sounds app

“A group called ‘Wild Ventures’ have produced four amazing apps (available on the Apple App Store) which from my experience are the most beautifully designed apps for relaxation. Each of the apps have different themes but they all include high quality nature sounds and beautiful illustrations to capture the feeling of being surrounded by nature. Please click on the link below for more details.”

21 Accessible Musical instruments

“'We need to put inclusion at the start of the process': the disabled musicians making their own instruments.’

Music journalist Sam Davies speaks to disabled female musicians about the lack of accessible musical instruments for people with varied physical abilities and why they decided to create their own.”

If you have any questions at all, please ask and I'll do my best to find an answer.

With best wishes, Romany




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